Monday, June 29, 2009

Ok, so I lied

There isnt a video of Alvin speaking. Why? He wont do it for the camera. So, hopefully, over the next week I will be able to catch him doing it without him knowing I am filming. Wish me luck! I will post later about our wonderful weekend.

Friday, June 26, 2009

Appointments, appointments, appointments

Ok, so we have the genetics appointment scheduled for July 6th. On July 7th, we have to go to have an abdominal x-ray done, then meet with the surgeon to discuss the biopsy. From what we understand, the biopsy will either be performed on Thursday or Friday of that same week. So, that week will be busy, busy, busy. Please, keep Alvin in your prayers. He really needs them.

Appointments, appointments, appointments

Ok, so we have the genetics appointment scheduled for July 6th. On July 7th, we have to go to have an abdominal x-ray done, then meet with the surgeon to discuss the biopsy. From what we understand, the biopsy will either be performed on Thursday or Friday of that same week. So, that week will be busy, busy, busy. Please, keep Alvin in your prayers. He really needs them.

Drumroll please....

We have our first official word spoken today. Unfortunately, I wasnt able to get video of it, as he did it while we were at the Panda Buffet, and my camcorder on my phone has crapped out. So, I will get video of it tomorrow. But, his first official word is "Hi", and it was said to an adorable little 20 month old girl. Go Alvin! Look for the video tomorrow.

Tuesday, June 23, 2009

Alvin's first steps

video

Monday, June 22, 2009

Getting somewhere

Well, we have a genetics appointment. July 6, we will be going down to Yale Genetics. We were very lucky to get that appointment. The geneticist only sees new patients once a month, and they were full until the end of September. Luckily, someone one cancelled and they are able to get us in in just two short weeks. So, here is to hoping that the command will allow Eric to have that day off.

Also, GI is going to perform a rectal biopsy on Alvin. Great, he is going to have to go an be put under and intubated again. Fun. Here is to hoping that can be scheduled while Eric is in port. It would suck to have to go through that without Eric being home.

But, we are on the road to finding out, once and for all, what is wrong with Alvin. It's only been a year, but whatever.

Getting somewhere

Well, we have a genetics appointment. July 6, we will be going down to Yale Genetics. We were very lucky to get that appointment. The geneticist only sees new patients once a month, and they were full until the end of September. Luckily, someone one cancelled and they are able to get us in in just two short weeks. So, here is to hoping that the command will allow Eric to have that day off.

Also, GI is going to perform a rectal biopsy on Alvin. Great, he is going to have to go an be put under and intubated again. Fun. Here is to hoping that can be scheduled while Eric is in port. It would suck to have to go through that without Eric being home.

But, we are on the road to finding out, once and for all, what is wrong with Alvin. It's only been a year, but whatever.

Sunday, June 14, 2009

My son is sick.


Nasty fever. Stuffed, runny nose. Cranky demeanor. Sick. Oh yeah, when they are only 16 months old, it's even worse. He is completely inconsolable. Lord, please give me strength to get through this. Patience is not my strong suit.


Thursday, June 11, 2009

A small step in the right direction

Ok, so today was a follow-up at Yale. They did the standard questions and then asked what all we have been doing since the last appointment. So, I told them. We had been to Hasbro for a second opinion. Boy, that got the fire lit in Yale's pants. So, they asked all sorts of questions on what Hasbro thought, etc. Well, well. Looks like Yale might actually decided to be serious about this now and stop blaming me!

Anyway, they have taken a complete medical history of Alvin. It was then that the GI noticed the cafe-au-lait spots Alvin has. He asked how many Alvin had, which he has 16. So, that got the GI's eyes huge. Combine that with Alvin's abnormally large head and chronic constipation and well, we are off on a theory. What that theory is, they wont exactly say. But, they have scheduled Alvin for a barium enema with contrast next week, and have given us referrals to an endochronologist, a neurologist, and a geneticist. So, at last, we are on the track to figure this crap out. (No pun intended)

So, please pray for an actual answer sometime soon!

A small step in the right direction

Ok, so today was a follow-up at Yale. They did the standard questions and then asked what all we have been doing since the last appointment. So, I told them. We had been to Hasbro for a second opinion. Boy, that got the fire lit in Yale's pants. So, they asked all sorts of questions on what Hasbro thought, etc. Well, well. Looks like Yale might actually decided to be serious about this now and stop blaming me!

Anyway, they have taken a complete medical history of Alvin. It was then that the GI noticed the cafe-au-lait spots Alvin has. He asked how many Alvin had, which he has 16. So, that got the GI's eyes huge. Combine that with Alvin's abnormally large head and chronic constipation and well, we are off on a theory. What that theory is, they wont exactly say. But, they have scheduled Alvin for a barium enema with contrast next week, and have given us referrals to an endochronologist, a neurologist, and a geneticist. So, at last, we are on the track to figure this crap out. (No pun intended)

So, please pray for an actual answer sometime soon!

Saturday, June 6, 2009

Roger Williams Park Zoo

Took the kids to the Roger Williams Park Zoo today with another friend, S and her son, A. (Names withheld because I didnt think to ask permission to post them). We had a wonderful time just walking around and looking at the various animals. We had a bit of a mishap that involved baby noggin, concrete and first aid, but luckily, her son is a real trooper. (Get better A!)
Here are some pics from the day.


Some butterflies at the Flutterby exhibit.
The kids sitting on an elephant statue.

Me and the kids. Yeah, I look like crap, Emali has the 'cheesy' look and Erin was cranky. But, we had fun and that is all that matters.



Tuesday, June 2, 2009

Tonight...

...just isnt a good night. I have been keeping myself super busy so that I dont realize that Eric isnt here. It was working all good and fine until I sat down tonight and allowed myself to miss him. Now I cant stop crying. I just want him home. I know he hasnt been gone that long. But after the long in port period, you get used to them being around. You forget what it is like when they go out to sea. Now he is out to sea and all I can do is sit here and desperately want him home. I love that man more than I knew I could and to not have him in this house with me kills me inside. I stay strong for the kids, especially Alvin. There is just no way to explain to him why mommy is sad and why daddy isnt around. I know that tomorrow I will be ok. I know that I can do this. Tonight, I want him home. Tonight, I want him to be a civilian. Just for tonight.