Tuesday, December 14, 2010


I cant believe that it's December 14th already. Tommorrow we head to Boston Children's Hospital to visit the NF clinic in the Genetics Department. Ya'll I am apprehensive and excited all at the same time. I dont know what to expect from this doctors visit. I'm scared that after all this lead up, I'll be let down. That we'll walk out of there without answers. All the doctors we've seen thus far have either been A) off their rocker or B) didnt know a thing about neurofibromatosis. Granted, we still dont know 100% for sure that is what Alvin has, but all signs point in the direction. Hopefully, we'll have more definitive answers tommorrow. At least I hope anyway. I'm sick of the roller coaster of not having definitive answers. I'm sick of the "We think...". These people are specialists in NF, surely they will know what the hell is going on. I'll be posting tomorrow all about the visit, once we get home, on Alvin's blog. I'll link up here so that you can click over from here. Those of you who are friends on FB should get real time updates. Please keep us in your thoughts tomorrow.