Saturday, May 3, 2014

NF Awareness Month: Meet Sebastian

This little cutie is named Sebastian. He is a NF Warrior I'd like you to meet.

Sebastian's Mom: "Sebastian is now 3 years old. He was diagnosed as an infant with NF1. An MRI before he turned 2 showed OG but not significant enough for any needed treatment. A year later, 3 weeks before his 3rd birthday, his annual MRI showed a significant increase in the tumors and was causing vision changes. We began chemo treatment just one week later. That was July 2013 and Sebastian does weekly chemo and is scheduled to continue through this treatment through September. As a result of the chemo, Sebastian suffers from debilitating neuropathy in his legs and feet. These side effects are very intense and cause him great anxiety. Sebastian is such a sweet boy, he is constantly hugging and kissing and saying "I love you," even during chemo he will chose items from a treasure box for his sister and not himself. I am so proud of my Super Sebastian!"

 You can learn more about Sebastian and his journey by following his page on Facebook: Sebastian's Sweethearts.

If you do follow Sebastian, let them know either Wild Rice or Alvin's Allies sent you! The more we can get out about NF, the better!

*information shared with permission of Sebastian's mom, Amie.*